It’s been a while since I’ve written an update on Josiah here on the blog and a lot has happened! Over the last six weeks, most days have felt like that popular parenting quote – “the days are long, but the years are short” – or however it goes. There are days when I feel like all I have done is feed and keep a little human alive, and if I’ve showered or brushed my teeth, it’s been a REALLY good day.
But then there are those magical moments…those I-just-want-to-freeze-time-is-this-really-my-life moments…and the gratitude just overflows. These are the wonderful things that I could only dream about when we were in the NICU. And now, we are actually living this dream. Here are some of the highlights below…
This is literally a miracle. Josiah is now almost TEN pounds. Double digits, people! I remember the times in the NICU when we were just rooting for him to get to three pounds. When I look at this then-and-now picture, I can’t even find the words. So beyond thankful for those chubby cheeks and fingers!
Josiah got to meet his grandparents! My parents were in town the last half of February and it was GLORIOUS! They cooked and cleaned and burped Josiah and held him around the clock…leaving me time to actually sleep! The older I get, the more convinced I am that my parents are the coolest, most important people in the world. Which is why I consider it an honor that I got to give them a new title – grandpa and grandma. Needless to say, they’re over the moon in love with Josiah.
Josiah celebrated his 100 days on February 27th! There is a Korean tradition that celebrates the 100th day of life for a newborn baby (back in my grandparents’ generation, it was said that if your baby made it to 100 days, the chances were significantly higher that the child would live; hence, the big 100 day celebration). People nowadays don’t really do much for it. Back in 1989, my dad wrote up that nifty little sign and snapped a photo. For the sake of following in tradition, I had him write up a similar one for Josiah’s 100 days. I think he has my nose…
A few days later, Josiah turned one month old (adjusted age) on March 1st! Although he is obviously older than that with a November birthday, for the first two years, preemies’ growth and development track along with their adjusted age, the age they would have been if they had been born around their due date. At this point, he mostly eats and sleeps but will do the occasional super cute thing like smile for the camera. I think we have a little ham on our hands!
See what I mean?? 🙂
Now on to Josiah’s physical/medical conditions and progress (you can read the doctors’ initial prognosis in the NICU here). We have some MAJOR praise reports coming right up!
- The doctors have been doing regular ultrasounds on Josiah’s right duplicate kidneys (he does not have a kidney on his left side) and they are finding that they are growing well! His urine output has been fantastic since day one and a VCUG revealed that all of his urine is flowing in the right direction (nothing flowing backwards!). So thankful! We will continue to have more ultrasounds to make sure his kidneys are developing at the right pace.
- Josiah used to have a very loud heart murmur due to the small VSD and PDA in his heart. However, as the weeks went by in the NICU, the nurses kept remarking how his murmur has been getting quieter and quieter, to the point where it has been barely audible. That leads us to believe in faith that the holes are closing! Josiah will have another echocardiogram in mid-April and we are praying for those results to indeed show us that the holes have closed.
- When we first got admitted, the doctors believed that Josiah could potentially have a tethered spinal cord (as it could be related to his VACTERL imperforate anus condition). Josiah had another ultrasound that still was unclear; thus, he underwent an MRI to get a clearer picture. After looking at the results, the neurologist was happy to report to us that Josiah does not have a tethered spinal cord. He even went on to say that the chances for any complications to arise due to Josiah’s spinal cord is basically zero at this point. This was a HUGE praise report!
THANK YOU to the many family and friends and even strangers who have been praying for us. Your petitions before an Almighty God are a part of Josiah’s miracle story.
Last but not least, another prayer request regarding Josiah’s surgeries. In the coming months, Josiah will have two surgeries related to his imperforate anus. The first will create his anus and the second will reconnect and redirect his colostomy out to his anus. The timing will depend on Josiah’s rate of growth, his readiness for surgery, how he takes to the anal dilation we will have to do with him, etc. I will write up a list of specific prayer requests down the road as we get closer to surgery. However, in the mean time, I truly believe this is our window of opportunity to pray for a creative miracle from the Great Physician, the Creator God who has the final word. The Lord is not done with Josiah yet!
This is one of the rare pictures of all three of us on my birthday (one of us is usually the one behind the camera!). Too much celebrating…Josiah’s pooped! Or maybe he actually was pooping in that picture? 🙂
From our famiLee to yours…thank you for walking this road with us. There are not enough words in the universe to describe the up-and-down journey the last several months have been. Strange how sometimes the darkest night of our souls is also an opportunity to know and experience the love that surpasses all understanding. But through it all, we have felt wave after wave of prayers, peace, and grace flooding our tired, weary hearts. So together with you, we press on…knowing that there’s a miracle waiting for us around the corner.