I know, it’s been a long while since I’ve posted anything. Is it just me or is 2018 flying by?
We’ve had so many beloved family and friends asking about our not-so-little-anymore miracle boy and his progress post-surgery. Now that we are nearly three months post-op, it’s due time that I sent out a little update.
Long story, short…he’s doing REALLY well! PTL! 🙂
I explained in my last post back in January just before his surgery what exactly the last procedure would entail and what it would look like for us afterwards. I think the hardest part about heading into surgery is that you just don’t know how it’s going to go, how the healing process will be, etc. You’re walking into the unknown.
Psalm 139:14 muslin swaddle blanket from Modern Burlap
But by the grace of God, here we are on the other side of the unknown, and all doing better than we had expected.
The surgery itself went smoothly. Within 50 or so hours, Josiah passed his first stool into his diaper. I thought I would cry upon seeing that miracle for the first time, but I was literally jumping up and down with joy in the hospital room. Funny the things you get excited about after becoming a mom. 🙂
Although this last operation wasn’t as long or as big of a procedure as the one he had in August, the incisions were fairly large in his lower abdomen so it made recovery slower than the previous surgeries. Kiddo was definitely in some pain for a while even after our week-long stay at the hospital. That was no fun.
However, after his first stool, he continued to poop well after that! He was sent home on two medications per usual for this type of procedure (a laxative and a stool stimulant). After our two week post-op check up, Josiah had been pooping so well that the surgeon discontinued the laxative prescription and he is currently only on the stool stimulant every other day or so. Our prayer is that Josiah will be medicine-free and pooping like a champ for life (never thought that would be my prayer for my first-born before becoming a mom – haha)!
Most toddlers Josiah’s age are usually pooping once, maybe twice a day? Since the surgery, Josiah’s had about 6-8 dirty diapers a day. This is basically “normal” and somewhat expected for him after all he has gone through with the colostomy and surgeries.
Our goal in the coming months is to start to see a pattern of some sorts. Rather than focusing on the number of dirty diapers, our surgeon wants to see Josiah have good quality, substantial stool output at one time, and then nothing for a while, and then another good poop, etc. What we don’t want are constant little smears of poop all the time.
We are slowly, but surely moving towards that week by week. Sometimes the progress seems minimal, sometimes stagnant, but looking back, we have definitely come a long way.
Additionally, we have had none of the major issues that we were warned could happen – the procedure not “sticking,” infection in the incision, serious constipation, blockage along his digestive tract, etc. Of course this is going to be something we monitor closely for the next several years. And medically speaking, anything can change at any point. However, I have to remind myself on a daily basis that it is a literal miracle that Josiah is pooping so well and hasn’t had any issues so far. There is SO much we have to be thankful for.
The one thing that has happened (and again, this was totally expected) is that Josiah has had several diaper rashes. 😦 He got a really gnarly, bloody one soon after the operation simply because his tender skin around his bum had never experienced poop before. And with him pooping so often, and even with immediate diaper changes, he’s just been more prone to diaper rashes.
But as our surgeon said, if diaper rashes are our biggest problem at this point, Josiah has done really well…so much better than even our surgeon had expected.
And that is the miracle I choose to celebrate each day.
Don’t get me wrong, the last few months haven’t always been easy. There were days when I would cry out in frustration before the Lord, asking Him when…WHEN will Josiah be totally and 100% healed? When will doctor’s appointments stop dominating our monthly schedule? When will be the day that I can totally breathe and feel as though this is all behind us?
And every time I feel like I am just barely hanging on by a thread of hope, He reminds me of just how far we have come. Of how He has miraculously provided for us along this whole unexpected journey. Of how He has surrounded us with so many friends who have become family, who have contended in prayer with us for Josiah’s complete healing. And the list goes on and on.
So today, I again make an active choice to celebrate our miracle. Not dwell on the things I cannot control. Not worry about the things I cannot change. But believe in an Almighty Creator and our good Father who loves to do the impossible.
And from the bottom of our hearts, we want to thank you. We would not be where we are today had it not been for your prayers. Thank you for loving our family through what has been the craziest season of our lives. We are so looking forward to the many good things yet to come.