Summer Fun + More Surgery // An Update on Josiah

As many of you have probably realized by now, I tend to be a little verbose.  What can I say?  I like a good story.  And I think it is in the details that life becomes more scrumptious.

But sometimes, it’s just been a long day.  And the creative energy (any energy actually) is just non-existent.

So concise will just have to do.  So here it goes.

Summer flew by.  Josiah had surgery in June.  It went well and in hindsight, it was good “practice” for the one coming up.

July was filled with lots of “firsts” for our not-so-little-anymore little man – first plane ride, first time experiencing a Phoenix summer, first haircut, first time seeing the extended family, first time hanging out at the bowling alley, etc.  Cue the pictures.

It was the best three week vacation any momma could ask for – a.k.a. sleeping in, not having to cook every meal, doting grandparents to watch the baby, actually getting dressed up for a night out.  Pure bliss.

And now somehow, it’s already August.  And the date that’s been looming on our calendar – August 16th – is already here.  The date of Josiah’s next surgery.

This is “the big one” that I have been alluding to in previous posts.  There are three main objectives for this surgery

  1. Go in and separate Josiah’s colon/rectum from his urethra as they are currently fused alongside each other,
  2. Bring his colon/rectum down through the right muscles in his bum without damaging any other nerves, and
  3. Create his anus.

The procedure will take a minimum of four hours and we will be admitted into the hospital, so we are anticipating having to stay a few nights.

A couple weeks after this procedure, we will begin the next step in this process – anal dilation.  Josiah’s body will think this new anus is an open wound and potentially try to close it back up.  Thus, we will need to dilate morning and evening to stretch out his new anus and prepare it to be able to pass stool.  Josiah will still have his colostomy bag during this time.

Depending on how the dilation process goes, we will do this for a couple of months before Josiah has his final surgery to reconnect everything so that he will pass stool through his anus.

A poopy diaper is probably not at the top of anyone’s list of dreams but for this famiLee, it will be a dream almost a year in the making.

And then the real journey of faith begins.  But more on that later.

One thing I have learned over the last almost nine months since Josiah was born is to never be ashamed or afraid to ask for prayer.  And to keep asking for it.  And to keep believing with a crazy, ridiculous, incomprehensible faith that the impossible can happen when God’s people come together before the Almighty Creator.

So, will you pray with us?  

Please pray for God’s healing hands to guide our surgeon and his team.  For the surgery to be 100% successful.  That there will be no damage to nerves, muscles, tissues, etc.  For Josiah to wake up from anesthesia well and quickly resume his happy, healthy, giggly, hungry ways.  That my husband and I will have grace for ourselves, for one another, and for everyone involved in this process.

But most of all, please pray that God’s glory would be revealed through our son’s little body.  That somehow, a testimony would arise from the ashes of this season.  That healing would triumph.  

From our lips to His throne – “Jehovah has healed.”

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Silence

When my parents visited us in Kansas City this past November, one of the things they kept saying over and over again was that they felt like they had come to a quiet cabin in the woods.  Everything was so peaceful and still.  Now, mind you, our house is like any other home in the suburban sprawl across America; we just happen to have real, green grass and three giant trees in our yard instead of the usual cacti and rocks my parents are used to (a.k.a. Phoenix).

But there is some truth to their statement.  Ever since I’ve moved to the Midwest, I’ve felt like my soul has done some unwinding.  It’s the first time in my young adult life that I’ve experienced something of a Sabbath lifestyle.  Sure, there is still the daily routine, working, keeping up a home, meeting friends, etc.  But something about the pace is different.  Or perhaps I’ve given myself the permission to breathe.  Or maybe I’ve realized that I erroneously placed so much value on hyperventilating through my “ultra-stressful, ultra-productive” day as if that equated to my life having real meaning and purpose.

I recently heard a speaker and teacher share about his journey with the Lord and how early on in his Christian walk, God taught him the importance of starting or ending his day with silence.  He did not “empty his mind” in that hour; rather, he would focus his thoughts on an attribute of God (e.g. His faithfulness, His mercy, etc.) or gaze upon a painting of Jesus on the cross.  And as the traffic of his soul died down, he experienced some of the sweetest moments he has ever had with the Lord.

Around that same time, I came across this article on Relevant magazine written by Jayson D. Bradley.  It’s a provoking read, but some of his closing statements resounded with clarity in the dusty caverns of my soul…

“The silence we need is more than an absence of sound; it’s a break from constant stimulus and activity. It’s about allowing the tangled cords in our spirit and mind to unravel and be stilled. It’s about stopping the constant need to control our surroundings with our actions and words in a never-ending quest to drown out the unrest in our hearts. It’s about facing the dragon of emptiness, loneliness, frustration, anger, hurt and need head on—and doing the soul-wrenching work of letting Jesus deal with it.”

Yes.  All of that, yes.  So that’s when I decided I needed to learn how to be still and silent before His presence. Read more…

God, Are You Real?

I dare you to ask the question, and then see what He “says.”

If you’re a believer, a disciple of Jesus Christ, a Christian, you automatically answer the question in your own head – “Yes, of course He is real!  I believe that He is!”

Yes, believing (a.k.a. having faith) is what Hebrews 11:1 describes – “Now faith is the substance of things hoped for, the evidence of things not seen.”  Faith is the necessary starting point of the Christian life.  However, as I’ve asked the question within my own heart this past week, I’ve been challenged to rephrase my own head’s response – “Yes, but do I know that He is real?  Do I live each day like He is real?”

If you’re not a believer, have never really heard about Jesus, or you’ve experienced negativity around Christianity, I still dare you to ask the question – “God, are You real?”  Why ask?  Because He is faithful to respond. Read more…