It has been almost six and a half months since the day that our lives changed forever.
It feels like yesterday and forever ago all at the same time.
There are days that I feel victorious. Days when I am so confident in the mighty future the Lord has in store for our son…for miracles…for healing…for a radical testimony to come out of this little life.
And then there are days that I feel absolutely defeated. Days when the doubts and worries and fears come rushing into the sink hole that has found its way into my soul.
Yet, woven throughout the new normal of our days, between diaper changes, bath time, nursing, playing, crying, and giggling, are the whispered reminders of God’s promises to us over our son.
See, right after Josiah was born, the Lord gave us two promises. The first one came in the story of the meaning of his name – “Jehovah has healed” – which I wrote about here.
The second promise came through my dad the day after Josiah was born at 29 weeks. For decades, my father has built a habit of starting out his day reading a few chapters from the Bible, not necessarily following a plan but just reading from Genesis to Revelation. Time and time again, the Lord has spoken to him in the face of many difficult situations through the exact chapters he was to read for that day.
The Lord did not disappoint as my dad woke up on November 21, 2016, with a heavy heart, asking the Lord what had gone wrong. How had this happened? Not only was his first grandchild born prematurely, this little boy was also born with a birth defect. He opened up the Word to the chapter that was next for that morning – John 9.
“As he passed by, he [Jesus] saw a man blind from birth. And his disciples asked him, ‘Rabbi, who sinned, this man or his parents, that he was born blind?’ Jesus answered, ‘It was not that this man sinned, or his parents, but that the works of God might be displayed in him…'” (John 9:1-3; ESV)
It wasn’t an answer that made sense to our human minds. But we knew it was a promise from the Lord. That none of this was in vain. That somehow, the works of God would be revealed through our little son’s body and life.
A few months ago, I was scrolling through Instagram when I saw that a friend of mine was creating art out of Scripture for thirty days.
And in that moment, the Divine Voice broke through and silenced the busy traffic of my soul. This…this is the truth over Josiah. My ways are not your ways. This is going to be good and this is going to be glorious.
My friend was kind enough to mail the original artwork to us, and it’s currently in Josiah’s room as a constant reminder of God’s promise.
No matter what happens the next few months, His Words are what we are going to hold on to.
This coming Wednesday morning, on June 7th, Josiah will have his second surgery (he had his first one the day after he was born) of four total surgeries to correct his imperforate anus. Below are the specific prayer requests we desire to lift up before the Lord as we walk into this next step of healing for our son…
- That God’s mighty works would be displayed through Josiah. We are contending for creative miracles, for the Lord to finish His perfect work of wonderfully and fearfully creating our son. We want to see the look of shock and awe on the faces of Josiah’s surgeons and medical staff as they examine his development and progress.
- That all necessary medical intervention will be 100% successful. We are believing for everything that his surgery team has planned for Josiah’s body to go even better than planned. We are asking for His angels to guide the hands of all of the medical staff who will be a part of Josiah’s case.
- That recovery and healing will be quick and as painless as possible. And also grace and mercy over my husband and me as we tend to Josiah post-op and work through next steps at home (e.g. continuing to change his colostomy bag, eventual daily anal dilation, etc.) to prepare Josiah for his last two surgeries.
A couple of weeks after the surgery this Wednesday, Josiah will have one more procedure (that will still require general anesthesia). The information his surgery team collects from that procedure will determine the final plans for Josiah’s major surgery in August. After that, as long as the dilation process is going well at home, Josiah will have his final redirect surgery sometime in the fall (we are hoping everything is done by his first birthday/Thanksgiving).
To all of our prayer warriors who are fighting alongside us…thank you. Truly. I wish I could reach out and give you each a virtual hug. Your declarations of truth before His throne of grace strengthen us in ways you cannot even imagine.
The road ahead looks long and it’s definitely not going to be easy. But this I know. It’s going to be good. And it’s going to be glorious.