We’ve Come a Long Way // An Update on Josiah

I can hardly believe it’s already July and this is only my fourth post this year!

Actually, well yes, I can believe it.  Because despite all of my good intentions and the many blog ideas that are recorded on my phone, my days are now mostly filled with this kind of fun…

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Don’t even get me started on the time I found him in the living room, in his birthday suit, playing with his diaper…the diaper I had just put on him about 30 seconds earlier.

Thank the good Shepherd there was no poop in that diaper! 🙂

Speaking of poop, a lot has happened since my last post about Josiah‘s progress after his last surgery in January. Read more…

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Celebrating Our Miracle // An Update on Josiah

Hi world!

I know, it’s been a long while since I’ve posted anything.  Is it just me or is 2018 flying by?

We’ve had so many beloved family and friends asking about our not-so-little-anymore miracle boy and his progress post-surgery.  Now that we are nearly three months post-op, it’s due time that I sent out a little update.

Long story, short…he’s doing REALLY well!  PTL! 🙂 Read more…

The End & The Beginning // An Update on Josiah

A year ago, I could not fathom how we were going to get through 2017.  We were just about to leave the NICU after 9 weeks, knowing that we would make the hospital our second home with the multiple surgeries and follow up appointments Josiah would need.

Yet, here we are a year later, three surgeries down and only one more to go.

It was only possible by the grace of God and by your prayers.  Truly.

And as we head into this last surgery, we are anchoring our souls on that truth once more.  That His grace is truly sufficient enough for us and the prayers of a righteous person are powerful and effective.

So, what does this last surgery look like and what does it mean for Josiah? Read more…

Still Here // An Update on Josiah & Our Lives

Hi world!

(Stay tuned – or scroll down to the end – to see a cute, little sneak peak of what we have been working on with Josiah lately!)

It’s been a LONG time.  Almost three months, I know.  It feels like a lot happened these last three months, but then it also just feels like not much has happened because one day just blurs into the next and then on and on for eternity.  I guess that’s how one could describe motherhood. 🙂

Anywho, I am way overdue for an update on Josiah’s most recent surgery.  Long story short, the surgery itself went well.  It looked like we were smooth sailing until we went to see the surgeon again for our first post-op appointment.  At the time, there was a significant tear near his newly created anus which led to concern that the colon had retracted back in and that everything had not been brought down low enough.  All we could do was wait a few weeks for the new tear to heal and then we would take next steps.

It’s easier to talk about it now because it’s several months removed and the prognosis looks much better now than it did back then.  But you better believe those weeks of waiting and thinking the worst (that he would have to go back in for additional surgery, that his colon wouldn’t be functioning properly, etc.) were hard.  Really hard.  I don’t think it’s been that hard since our initial days in the NICU.

We prayed.  We wrestled with the Lord.  We cried.  We worried. Read more…

Summer Fun + More Surgery // An Update on Josiah

As many of you have probably realized by now, I tend to be a little verbose.  What can I say?  I like a good story.  And I think it is in the details that life becomes more scrumptious.

But sometimes, it’s just been a long day.  And the creative energy (any energy actually) is just non-existent.

So concise will just have to do.  So here it goes.

Summer flew by.  Josiah had surgery in June.  It went well and in hindsight, it was good “practice” for the one coming up.

July was filled with lots of “firsts” for our not-so-little-anymore little man – first plane ride, first time experiencing a Phoenix summer, first haircut, first time seeing the extended family, first time hanging out at the bowling alley, etc.  Cue the pictures.

It was the best three week vacation any momma could ask for – a.k.a. sleeping in, not having to cook every meal, doting grandparents to watch the baby, actually getting dressed up for a night out.  Pure bliss.

And now somehow, it’s already August.  And the date that’s been looming on our calendar – August 16th – is already here.  The date of Josiah’s next surgery.

This is “the big one” that I have been alluding to in previous posts.  There are three main objectives for this surgery

  1. Go in and separate Josiah’s colon/rectum from his urethra as they are currently fused alongside each other,
  2. Bring his colon/rectum down through the right muscles in his bum without damaging any other nerves, and
  3. Create his anus.

The procedure will take a minimum of four hours and we will be admitted into the hospital, so we are anticipating having to stay a few nights.

A couple weeks after this procedure, we will begin the next step in this process – anal dilation.  Josiah’s body will think this new anus is an open wound and potentially try to close it back up.  Thus, we will need to dilate morning and evening to stretch out his new anus and prepare it to be able to pass stool.  Josiah will still have his colostomy bag during this time.

Depending on how the dilation process goes, we will do this for a couple of months before Josiah has his final surgery to reconnect everything so that he will pass stool through his anus.

A poopy diaper is probably not at the top of anyone’s list of dreams but for this famiLee, it will be a dream almost a year in the making.

And then the real journey of faith begins.  But more on that later.

One thing I have learned over the last almost nine months since Josiah was born is to never be ashamed or afraid to ask for prayer.  And to keep asking for it.  And to keep believing with a crazy, ridiculous, incomprehensible faith that the impossible can happen when God’s people come together before the Almighty Creator.

So, will you pray with us?  

Please pray for God’s healing hands to guide our surgeon and his team.  For the surgery to be 100% successful.  That there will be no damage to nerves, muscles, tissues, etc.  For Josiah to wake up from anesthesia well and quickly resume his happy, healthy, giggly, hungry ways.  That my husband and I will have grace for ourselves, for one another, and for everyone involved in this process.

But most of all, please pray that God’s glory would be revealed through our son’s little body.  That somehow, a testimony would arise from the ashes of this season.  That healing would triumph.  

From our lips to His throne – “Jehovah has healed.”